LITTLE HEARTS HOLD BIG HOPES!!

JORDAN COLE HEATH WAS BORN OCTOBER 6, 2010. HE WEIGHED 4LBS, 4OUNCES. HE WAS BORN AT CHANDLER REGIONAL HOSPITAL. WHEN HE WAS BORN HE HAD A LITTLE TROUBLE BREATHING AND I THOUGHT OKAY, HE JUST NEEDS A LITTLE OXYGEN AND HE WILL BE OKAY AND ABLE TO GO HOME.. I WAS WRONG. THAT NIGHT  ME AND MY WONDERFUL HUSBAND WENT IN TO SEE HIM AT THE SPECIAL CARE NURSERY AT CHANDLER. THE NURSE TOLD US THAT THE EX-RAY THEY DID OF JORDAN'S HEART AROUND IT THE VESSELS WERE SO SMALL THEY COULDN'T SEE THEM VERY WELL., SO THEY WERE TAKING HIM TO ST JOSEPH'S HOSPITAL FOR FURTHER TESTING AND EVERYTHING. THE DAY I GOT DISCHARGED FROM THE HOSPITAL, WE WENT OVER TO SEE HIM AT THE NICU AT ST JOSEPH'S. HE LOOKED SO SMALL. THE DOCTORS AND NURSES SAID TO US HE WILL PROBABLY NOT SURVIVE, I NEVER GAVE UP HOPE AND FAITH AND I AM STILL NOT GIVING UP FAITH AND HOPE,. HIS LITTLE HEART IS HOLDING SOMETHING BIG AND IT CALLED HOPE. HE STAYED AT THE NICU FOR ANOTHER WEEK OR SO. I CALLED EVERY NIGHT AND EVERY MORNING TO CHECK UP ON HIM. I CAME IN TO SEE HIM EVERY DAY.. I HAD TO HOLD HIM EVERY TIME I CAME IN. I HAD TO SPEND EVERY MINUTE I COULD WITH HIM. THEN HE WENT UP TO THE PEDIATRIC CARDIAC UNIT. THEN HE HAD A PROCEDURE WHERE THEY PUT A STENT IN THE NARROWING OF HIS AORTA AND IT BLOWS UP LIKE A BALLOON AND IT KEEPS THE BLOOD FLOWING. 4 HRS LATER, HE WAS OUT OF SURGERY. WE WENT TO SEE HIM. HE STILL LOOKED SMALL.. BUT HE WAS BIGGER. DR POPHAL WAS THE ONE THAT DID THE PROCEDURE. HE IS THE SWEETEST GUY. THEN HE RECOVERED FROM THE SURGERY REALLY WELL. THEN HE WAS READY TO GO HOME THE FIRST TIME FROM ST JOSEPH'S, THEN THE DRS CHANGED THERE MINDS... HE WAS GOING TO LOS NINOS HOSPITAL. I WASN'T HAPPY ABOUT IT. BUT IT WAS THE BEST FOR HIM. I HAD TO DEAL WITH IT. HE WENT TO LOS NINOS HOSPITAL. HE WAS AT LOS NINOS FOR A MONTH. THE DAY HE WAS SUPPOSED TO GO HOME FROM LOS NINOS. HE WAS GOING TO THE SCOTT AND LAURA ELLER CONGENITAL HEART CENTER FOR A ECHO AND A CHECKUP, WHEN WE WERE WAITING TO GO BACK.. HE TURNED BLUE AND STOPPED BREATHING, HE THREW UP SOME YELLOW BILE AND TURNED EVEN BLUER. LAURA FLEMING CALLED US BACK TO A ROOM. WELL, HE STATS WERE GOOD, THEY WEREN'T BAD. THEY DECIDED TO RE ADMIT JORDAN BACK TO ST JOSEPH'S. THEY GOT HIM TO A ROOM. THEY POKED AND POKED AT HIM TO TRY TO FIND A VEIN. I HAD TO LEAVE THE ROOM. HE WAS SO DEHYDRATED AND HUNGRY, HE HADN'T EATEN ANYTHING IN SO MANY HRS. THATS WHY THE COULDNT FIND A VEIN. BUT THE PUT THE IV THREW HIS BONE IN HIS LEG. THE NEXT DAY THE NURSE CALLED ME AND SAID OH THE IV IN HIS BONE WENT BAD, SO WE ARE DOING THIS PROCEDURE WHERE THE PUT A IV SURGICALLY THREW HIS NECK AREA SO HE CAN RECIEVE THE ANTIBIOTICS. THE NURSE CAME IN AND SHE OH WE FOUND OUT WHY HE HAD BLOOD IN HIS DIAPER AND WHY HE WAS THROWING UP YELLOW BILE.. HE HAS NEC. SO WE ARE TREATING HIM WITH NO FOOD ON HIS TUMMY AND ANTIBIOTICS. SO, THEY GOT HIM TREATED WITH ANTIBIOTICS AND EVERYTHING WENT WELL. WHEN THERE WAS A LIGHT AT THE END OF THE TUNNEL  COMPLICATIONS CAME. THEN ONE DAY ME AND MY PARENTS CAME IN AND WE SAW HE HAD A BREATHING TUBE. I ASKED THE NURSE WHY DOES MY SON HAVE A BREATHING TUBE IN HIM. SHE SAID OH THIS MORNING AT MIDNIGHT HE WAS BREATHING RAPID AND FAST SO WE PUT A TUBE DOWN HIS THROAT. I GOT REALLY UPSET. WHY DIDNT YOU CALL ME!!  HE IS MY SON. YOU GUYS SHOULD HAVE CALLED ME!!  SHE SAID OH WE DIDNT WANT TO TROUBLE YOU AND MAKE YOU WORRY BOUT HIM. I SAID I AM ALREADY WORRIED BOUT HIM. I AM THE MOMMY HERE I WORRY BOUT MY KIDS EVERY DAY!!!  WE HAD A MEETING WITH THE NURSE, LAURA FLEMING AND KRISTEN THE EMOTIONAL SUPPORT PERSON OF THAT FLOOR. IT WAS TEARFUL, THEY GAVE ME A BOX OF TISSUES JUST IN CAUSE I BROKE DOWN AND I DID. AS FOR THE PLAN, RIGHT NOW THEY ARE TREATING THE LUNG ISSUE AND BELLY ISSUE WITH ANTIBIOTICS AND IV NUTRITION. NO FOOD ON HIS BELLY FOR A LEAST TWO WEEKS AND THEY WILL START FEEDING HIM AND THEN SEND HIM HOME. THEN 4-6 MONTHS DOWN THE ROAD THEY WILL RE-EVALUATE HIM AND TELL US OUR OPTIONS AS FAR AS SURGERY GOES, THEY DONT KNOW YET. BUT THEY WILL KEEP US POSTED AND I WILL KEEP YOU ALL POSTED OF OUR LITTLE JOURNEY THROUGH JORDAN'S LIFE. 

ISN'T HE THE CUTEST THING YOU HAVE EVER SEEN??