hey guys! New pics of jordan coming soon... we are gonna see him today and i am
gonna get pics and i will post them soon!!
Friday, December 31, 2010
hey update on jordan!
hey guys update on jordan!!
they are doing surgery this upcoming week they are sure that its gonna be this
week, they arent sure what day its gonna be!! But i will keep ya posted!!
they are doing surgery this upcoming week they are sure that its gonna be this
week, they arent sure what day its gonna be!! But i will keep ya posted!!
Friday, December 10, 2010
My Butterflies
When I think of how much I love you,
It gives me such a thrill,
It's better than great - it's fabulous,
It's absolutely brill.
I wish I could find words to let you know,
How I feel inside my being,
Like elated, amazed and totally satisfied,
That you're the girl I'm seeing.
To love you and know that you love me too,
Is the best feeling since my life began,
To live the rest of it in love with you,
Is now my only plan.
To share with you my excitement,
At living my life with you,
To plan and build and dream together,
Then make it all come true.
I just can't find words enough to tell you,
That you simply are the best,
If you could only see the butterflies,
That flutter all round my chest.
The words I'm using don't go anywhere near,
Describing how happy I feel,
My heart just keeps skipping and dancing,
'Cos I know these feeling are real.
So I'll shut up about your beauty,
And ask you without any qualms,
To please stop reading this now,
And just hold me - tight in your loving arms.
It gives me such a thrill,
It's better than great - it's fabulous,
It's absolutely brill.
I wish I could find words to let you know,
How I feel inside my being,
Like elated, amazed and totally satisfied,
That you're the girl I'm seeing.
To love you and know that you love me too,
Is the best feeling since my life began,
To live the rest of it in love with you,
Is now my only plan.
To share with you my excitement,
At living my life with you,
To plan and build and dream together,
Then make it all come true.
I just can't find words enough to tell you,
That you simply are the best,
If you could only see the butterflies,
That flutter all round my chest.
The words I'm using don't go anywhere near,
Describing how happy I feel,
My heart just keeps skipping and dancing,
'Cos I know these feeling are real.
So I'll shut up about your beauty,
And ask you without any qualms,
To please stop reading this now,
And just hold me - tight in your loving arms.
A Childs Heart...
Are all grown up's in this world so strange?,
Caught up with just towing the line,
Having too much stress and bills and worries,
Instead of enjoying all of their time.
Life should be appreciated so much more,
Don't just waste it all away,
Sing and dance and live with passion,
Have some fun each and every day,
Enjoy the fact that you are living life,
And be grateful of the ability to play a part,
Remember some children never make it to adulthood,
They enjoy the beauty of living life - with a defect in their heart!
Caught up with just towing the line,
Having too much stress and bills and worries,
Instead of enjoying all of their time.
Life should be appreciated so much more,
Don't just waste it all away,
Sing and dance and live with passion,
Have some fun each and every day,
Enjoy the fact that you are living life,
And be grateful of the ability to play a part,
Remember some children never make it to adulthood,
They enjoy the beauty of living life - with a defect in their heart!
"Broken Hearts" - CHD Awareness Week 2010
Valentines Day is celebrated with hearts of every kind,
there's paper hearts and chocolate hearts
and hearts that speak our minds.
It is a day to express our love from deep inside our soul,
to acknowledge loved ones in our life and let our feelings show.
Now this day will be special in yet another way,
it's been proclaimed, in our Country, CHD Awareness Day.
On this day we will honor those born with their hearts broken,
the world will know of their plight, our silent thoughts now spoken.
We will remember loved ones, lost to CHD.
In our souls and in our hearts, forever they will be.
To those who continue to fight each day we are filled with admiration,
your courage, faith and love for life deserve this celebration.
We also want to recognize, honor and give praise,
to those who keep our hopes alive with their kind and caring ways.
The nurses, doctors, and researchers are part of this day too,
for the many hearts that still beat on, we give our thanks to you.
A day of hearts it truly is. Hearts of red and gold.
Now add to it a brand new symbol, another heart to hold.
Please remember on this day, those with hearts not perfect,
And everyone who loves someone, with a congenital heart defect.
there's paper hearts and chocolate hearts
and hearts that speak our minds.
It is a day to express our love from deep inside our soul,
to acknowledge loved ones in our life and let our feelings show.
Now this day will be special in yet another way,
it's been proclaimed, in our Country, CHD Awareness Day.
On this day we will honor those born with their hearts broken,
the world will know of their plight, our silent thoughts now spoken.
We will remember loved ones, lost to CHD.
In our souls and in our hearts, forever they will be.
To those who continue to fight each day we are filled with admiration,
your courage, faith and love for life deserve this celebration.
We also want to recognize, honor and give praise,
to those who keep our hopes alive with their kind and caring ways.
The nurses, doctors, and researchers are part of this day too,
for the many hearts that still beat on, we give our thanks to you.
A day of hearts it truly is. Hearts of red and gold.
Now add to it a brand new symbol, another heart to hold.
Please remember on this day, those with hearts not perfect,
And everyone who loves someone, with a congenital heart defect.
A Poem - unknown author
Your help is needed
And that's not all,
We need awareness,
For the little and the small.
We need your help,
to spread the word,
of congenital heart defects,
for little have heard!
This is a deadly defect,
affecting many that are born,
turning lives upside down,
leaving dreams shattered and torn.
Congenital heart defects,
known as CHD's,
are the #1 birth defect,
but a hidden disease.
Doses of medicine,
many times each day,
a little child,
that can't run or play,
his little heart,
can't take the stress,
his little body,
just needs to rest.
A little baby
that struggles to eat,
with tiny blue lips,
and hands and feet.
A mother stands by
her baby's grave,
praying through research,
others will be saved!
And that's not all,
We need awareness,
For the little and the small.
We need your help,
to spread the word,
of congenital heart defects,
for little have heard!
This is a deadly defect,
affecting many that are born,
turning lives upside down,
leaving dreams shattered and torn.
Congenital heart defects,
known as CHD's,
are the #1 birth defect,
but a hidden disease.
Doses of medicine,
many times each day,
a little child,
that can't run or play,
his little heart,
can't take the stress,
his little body,
just needs to rest.
A little baby
that struggles to eat,
with tiny blue lips,
and hands and feet.
A mother stands by
her baby's grave,
praying through research,
others will be saved!
A Heart Mummy's Wish
A Heart Mummy's Wish
It all started with my baby's heart,
I just wanted to give him a good start,
We never wanted to be apart.
I was overwhelmed with love why did I get handed this glove?
God gave me a beautiful creation,
He gave me a son,
Who needs so much medication?
Why do we live in such an uneducated nation?
Live with fear my son might die, before me and his father's cry,
He needs heart caths; I don't want to take this path,
But we cannot live a lie.
It's surgery day I don't want it to be this way,
All I want to do is cry and cry and ask god WHY?
He answers back but you have to try.
My son looks so blue, could this be true...
My son has a CHD I want him to stay with me,
How hard this was my family never knew,
But I tell them this is how it is...... this is true.
You feel all alone doctors, and hospitals are my new home,
If only the world would know how blue are my baby's toes,
And every day I am feared with woe's.
One day I pray there will be,
AWARENESS OF MY BABY'S C.H.D!
But until that day I‟m gonna fight,
With all my power and together we just might.
It all started with my baby's heart,
I just wanted to give him a good start,
We never wanted to be apart.
I was overwhelmed with love why did I get handed this glove?
God gave me a beautiful creation,
He gave me a son,
Who needs so much medication?
Why do we live in such an uneducated nation?
Live with fear my son might die, before me and his father's cry,
He needs heart caths; I don't want to take this path,
But we cannot live a lie.
It's surgery day I don't want it to be this way,
All I want to do is cry and cry and ask god WHY?
He answers back but you have to try.
My son looks so blue, could this be true...
My son has a CHD I want him to stay with me,
How hard this was my family never knew,
But I tell them this is how it is...... this is true.
You feel all alone doctors, and hospitals are my new home,
If only the world would know how blue are my baby's toes,
And every day I am feared with woe's.
One day I pray there will be,
AWARENESS OF MY BABY'S C.H.D!
But until that day I‟m gonna fight,
With all my power and together we just might.
CHD poem
What does it mean to be the parent of a child with a heart defect?
It means going into your baby's room a dozen times a night just to check and see if he is breathing.
It means standing over the crib and watching for the chest to rise and fall and when you don't see it move you begin to panic and put your head down close to the baby's face to try to hear him breathe.
It means that when you don't see the chest move and you don't hear the breathing (because your own heart's beating is drowning out any other sound in the room) you put your finger under the baby's nose to feel the warm air on your finger - until you wake the baby and he stirs - and you're thankful so thankful that he's still with you.
It means waking up with a start every morning, jumping out of bed and running to your baby's room wondering why he isn't crying yet? It means feeling a huge sense of relief when he hears you and opens his eyes and smiles, It means saying a prayer of thanks for another day.
It means measuring out his medication and panicking if he spits some of it out, How much did he spit out anyway? 1cc? 2 or 3? And wondering if you should guesstimate how much more he should have and worrying about overmedicating.
It means checking his nailbeds against your own to determine how blue he is today, It means asking your husband, your mother, your sister, "Do his lips look blue to you?"
It means snuggling him in an extra blanket for fear he wont be warm enough.
It means worrying that even a sniffle could cause an infection that would harm the heart.
It means taking your baby to the doctor and then worrying that the baby will get something even worse from being in the waiting room, so it means walking back and forth and back and forth in the corridor until the nurse calls your baby's name and takes you straight back to the examination room.
It means knowing that everyday is a blessing and a gift, it means knowing that you are the luckiest person in the world just to be a parent, it means cherishing every moment, every breath with such an intensity that you feel tears come to your eyes for no apparent reason.
It means praying for a miracle to save your baby's life.
It means praying that your marriage is strong enough to endure the hospitalizations, separations, and the grief.
It means your own heart knows a pain no parent should know.
It means feeling weak and helpless and angry and depressed because your child's fate is out of your hands, It means feeling strong and determined and brave because you know you have to be.
It means your love knows new unlimited boundaries, it means your pride in your child's accomplishments is unparalleled, It means your pain has taught you a deeper sense of compassion and understanding than you ever imagined.
It means we are united by the same feelings, it means that we all know the mixed up emotions of living with death-but more importantly of living with Life.
It means that even though we are strangers we are more to each other than friends could ever be.
It means going into your baby's room a dozen times a night just to check and see if he is breathing.
It means standing over the crib and watching for the chest to rise and fall and when you don't see it move you begin to panic and put your head down close to the baby's face to try to hear him breathe.
It means that when you don't see the chest move and you don't hear the breathing (because your own heart's beating is drowning out any other sound in the room) you put your finger under the baby's nose to feel the warm air on your finger - until you wake the baby and he stirs - and you're thankful so thankful that he's still with you.
It means waking up with a start every morning, jumping out of bed and running to your baby's room wondering why he isn't crying yet? It means feeling a huge sense of relief when he hears you and opens his eyes and smiles, It means saying a prayer of thanks for another day.
It means measuring out his medication and panicking if he spits some of it out, How much did he spit out anyway? 1cc? 2 or 3? And wondering if you should guesstimate how much more he should have and worrying about overmedicating.
It means checking his nailbeds against your own to determine how blue he is today, It means asking your husband, your mother, your sister, "Do his lips look blue to you?"
It means snuggling him in an extra blanket for fear he wont be warm enough.
It means worrying that even a sniffle could cause an infection that would harm the heart.
It means taking your baby to the doctor and then worrying that the baby will get something even worse from being in the waiting room, so it means walking back and forth and back and forth in the corridor until the nurse calls your baby's name and takes you straight back to the examination room.
It means knowing that everyday is a blessing and a gift, it means knowing that you are the luckiest person in the world just to be a parent, it means cherishing every moment, every breath with such an intensity that you feel tears come to your eyes for no apparent reason.
It means praying for a miracle to save your baby's life.
It means praying that your marriage is strong enough to endure the hospitalizations, separations, and the grief.
It means your own heart knows a pain no parent should know.
It means feeling weak and helpless and angry and depressed because your child's fate is out of your hands, It means feeling strong and determined and brave because you know you have to be.
It means your love knows new unlimited boundaries, it means your pride in your child's accomplishments is unparalleled, It means your pain has taught you a deeper sense of compassion and understanding than you ever imagined.
It means we are united by the same feelings, it means that we all know the mixed up emotions of living with death-but more importantly of living with Life.
It means that even though we are strangers we are more to each other than friends could ever be.
SIGNS OF CHD
Some signs of chd if in an undiagnosed child or adult could be the following:
Breathlessness
Failing to thrive
Irregular heartbeats (palpatations)
Blue fingers, toes, lips, etc........
Breathlessness
Failing to thrive
Irregular heartbeats (palpatations)
Blue fingers, toes, lips, etc........
Types of Congenital Heart Defects
Two of the more common congenital disorders are Ventricular Septal Defects (VSD) and Atrial Septal Defects (ASD). Both are abnormal openings in the wall between the side of the heart that pumps oxygen-poor blood to the lungs, and the side that pumps oxygen-rich blood out to the body.
A VSD (Ventral Septal Defect) is a hole that occurs in the septum, or wall, that lies between the left and right ventricles, or lower chambers.
An ASD (Atrail Septal Defect) is a hole that occurs in the septum between the left and right atria, or upper chambers.
In both cases, oxygen-rich blood from the left side seeps into the right side. This decreases the amount of circulating oxygen and puts additional strain on the heart and lungs.
A Patent Foramen Ovale, or PFO, is a type of ASD. The Foramen Ovale is a natural opening that exists between the right and left atria in the fetal circulatory system. The hole usually closes after the infant takes its first breath. If it fails to close, it is considered patent, or open. A PFO does not always cause health problems.
Much less common, but potentially more serious, is a PDA (Patent Ductus Arteriosus). The Ductus Arteriosus is a normal structure in the fetal circulatory system that allows blood to bypass the fetal lungs, since the lungs are not needed for respiration while the fetus is in the womb. This channel normally closes after birth. If it remains open, blood will flow from the aorta into the pulmonary artery. If the hole is large enough, it may lead to heart failure.
Narrowed and constricted blood vessels
Heart defects can also include narrowed or constricted blood vessels. One of the more common types of vascular defects is CoA (Coarctation of the Aorta). A narrowed or pinched aorta forces the heart to work harder to deliver blood. Eventually, the overload will damage both the heart and the aorta.
Here's a list of some of the 35+ Congenital Heart Defects:
Atrial Septal Defect (ASD)
Atrioventricular Canal Defect
Coarctation of the Aorta (CoA)
Congenitally Corrected Transposition of the Great Arteries (ccTGA)
Ebstein's Anomaly
Hypoplastic Left Heart syndrome (HLHS)
Hypoplastic Right Heart syndrome (HRHS)
Patent Ductus Arteriosus
Persistent Truncus Arteriosus
Pulmonary Atresia (PA)
Pulmonary Stenosis (PS)
Tetralogy of Fallot (ToF)
Transposition of the Great Arteries (TGA)
Tricuspid Atresia
Total Anomalous Pulmonary Venous Connection
Ventral Septal Defect (VSD)
A VSD (Ventral Septal Defect) is a hole that occurs in the septum, or wall, that lies between the left and right ventricles, or lower chambers.
An ASD (Atrail Septal Defect) is a hole that occurs in the septum between the left and right atria, or upper chambers.
In both cases, oxygen-rich blood from the left side seeps into the right side. This decreases the amount of circulating oxygen and puts additional strain on the heart and lungs.
A Patent Foramen Ovale, or PFO, is a type of ASD. The Foramen Ovale is a natural opening that exists between the right and left atria in the fetal circulatory system. The hole usually closes after the infant takes its first breath. If it fails to close, it is considered patent, or open. A PFO does not always cause health problems.
Much less common, but potentially more serious, is a PDA (Patent Ductus Arteriosus). The Ductus Arteriosus is a normal structure in the fetal circulatory system that allows blood to bypass the fetal lungs, since the lungs are not needed for respiration while the fetus is in the womb. This channel normally closes after birth. If it remains open, blood will flow from the aorta into the pulmonary artery. If the hole is large enough, it may lead to heart failure.
Narrowed and constricted blood vessels
Heart defects can also include narrowed or constricted blood vessels. One of the more common types of vascular defects is CoA (Coarctation of the Aorta). A narrowed or pinched aorta forces the heart to work harder to deliver blood. Eventually, the overload will damage both the heart and the aorta.
Here's a list of some of the 35+ Congenital Heart Defects:
Atrial Septal Defect (ASD)
Atrioventricular Canal Defect
Coarctation of the Aorta (CoA)
Congenitally Corrected Transposition of the Great Arteries (ccTGA)
Ebstein's Anomaly
Hypoplastic Left Heart syndrome (HLHS)
Hypoplastic Right Heart syndrome (HRHS)
Patent Ductus Arteriosus
Persistent Truncus Arteriosus
Pulmonary Atresia (PA)
Pulmonary Stenosis (PS)
Tetralogy of Fallot (ToF)
Transposition of the Great Arteries (TGA)
Tricuspid Atresia
Total Anomalous Pulmonary Venous Connection
Ventral Septal Defect (VSD)
What is a CHD?
A congenital heart defect is a problem with the structure of the heart.
It is present at birth.
Congenital heart defects are the most common type of major birth defect.
A baby's heart begins to develop shortly after conception. During development, structural defects can occur. These defects can involve the walls of the heart, the valves of the heart and the arteries and veins near the heart. Congenital heart defects can disrupt the normal flow of blood through the heart. The blood flow can:
*
Slow down
* Go in the wrong direction or to the wrong place
* Be blocked completely
Treatments for defects can include medicines, surgery and other medical procedures and heart transplants. The treatment depends on the severity and type of defect, a child's age, and size and general health.
Today, many children born with complex heart defects grow to adulthood and lead productive lives.
Here is a short list of heart medications a brief summery of what they are and why your heart child may need them:
Captopril - Helps with hypertention and congestive heart failure, this medication also helps with heart rhythm
Furosemide - Diuretic to reduce blood volume
Hydralazine - This medication is used for high blood pressure called Hypertension
Asprin - has an anti-clotting effect and is a blood thinner to prevent clots in narrowed arteries
Spironolactone - is known as a potassium-sparing diuretic because, unlike some other diuretics, it does not cause your body to lose potassium
Heparin - has an anti-clotting effect. Sometimes, you can get a Asprin/Heparin mix after heart surgery to again act as a blood thinner
Plavix- is used to stop platelets from sticking together and forming blood clots and helps blood flow more easily
These medications are just some of the over 54 meds that are used to treat congenital heart patients. These are the most commonly used medications.
It is present at birth.
Congenital heart defects are the most common type of major birth defect.
A baby's heart begins to develop shortly after conception. During development, structural defects can occur. These defects can involve the walls of the heart, the valves of the heart and the arteries and veins near the heart. Congenital heart defects can disrupt the normal flow of blood through the heart. The blood flow can:
*
Slow down
* Go in the wrong direction or to the wrong place
* Be blocked completely
Treatments for defects can include medicines, surgery and other medical procedures and heart transplants. The treatment depends on the severity and type of defect, a child's age, and size and general health.
Today, many children born with complex heart defects grow to adulthood and lead productive lives.
Here is a short list of heart medications a brief summery of what they are and why your heart child may need them:
Captopril - Helps with hypertention and congestive heart failure, this medication also helps with heart rhythm
Furosemide - Diuretic to reduce blood volume
Hydralazine - This medication is used for high blood pressure called Hypertension
Asprin - has an anti-clotting effect and is a blood thinner to prevent clots in narrowed arteries
Spironolactone - is known as a potassium-sparing diuretic because, unlike some other diuretics, it does not cause your body to lose potassium
Heparin - has an anti-clotting effect. Sometimes, you can get a Asprin/Heparin mix after heart surgery to again act as a blood thinner
Plavix- is used to stop platelets from sticking together and forming blood clots and helps blood flow more easily
These medications are just some of the over 54 meds that are used to treat congenital heart patients. These are the most commonly used medications.
"When Time Stands Still
It starts with news impossible to hear
It conjures up your every fear
It's when they say your child is ill
That's when time just stands still
In that moment, that suspended time
A thousand thoughts run through your mind
Will he ever laugh and play?
Will I see his wedding day?
All the planning, the hopes and dreams
Are put on hold -- just what does this mean?
His crib is empty, his toys alone
For now, the hospital will be his home
This is a place where time stands still
Where the void's too large to ever fill
For in a hospital's intensive care
Children lie, some unconscious, some aware
And time is measured by a new yardstick
Every second marked by a monitor's tick
Noting every breath the child takes
And every beat his tired heart makes
Just a moment of watching a child writhe or strain
In sedated confusion, or fear or pain
Or pleading for a drink to which you can't oblige
Seems like far more than an entire lifetime
And the children who live far too long
In hospital gowns, trying to be strong
They have old souls, that's what they say
Because in each moment they've lived a thousand days
For those who say time goes by too fast
Sit with an ill child, and see just how slowly time can pass
It conjures up your every fear
It's when they say your child is ill
That's when time just stands still
In that moment, that suspended time
A thousand thoughts run through your mind
Will he ever laugh and play?
Will I see his wedding day?
All the planning, the hopes and dreams
Are put on hold -- just what does this mean?
His crib is empty, his toys alone
For now, the hospital will be his home
This is a place where time stands still
Where the void's too large to ever fill
For in a hospital's intensive care
Children lie, some unconscious, some aware
And time is measured by a new yardstick
Every second marked by a monitor's tick
Noting every breath the child takes
And every beat his tired heart makes
Just a moment of watching a child writhe or strain
In sedated confusion, or fear or pain
Or pleading for a drink to which you can't oblige
Seems like far more than an entire lifetime
And the children who live far too long
In hospital gowns, trying to be strong
They have old souls, that's what they say
Because in each moment they've lived a thousand days
For those who say time goes by too fast
Sit with an ill child, and see just how slowly time can pass
Thursday, December 9, 2010
TIRED HEART
Tired heart
It's been a while since I haven't seen you
Been a while starting to forget you
Attempting to close the door for you
For I guess, this is the time
I've shown my feelings the sincerity inside
I've expressed the emotions, the sentiments
I rearrange my life just to follow you
I befriended sorrow and rejection for Cupid's pity
But for all I've done, you just remain neutral
It brought a tiredness that I can't go on anymore
I need to stop, leave everything to destiny
Because I perfectly done my part
Was there ever a time I made you smile
Was there ever a time, I occupied your mind
Was there ever a time you missed me
Was there ever a time you taught you love me
Have you ever felt you cared for me
Have you ever felt my presence enchanted you
Have you ever felt I made you blue
Have you ever felt you need me too
I wish somehow even a second you do
Just a consolation to a tired heart
I hope soon when I look back memory
Those were just memories of a man I used to love
It's been a while since I haven't seen you
Been a while starting to forget you
Attempting to close the door for you
For I guess, this is the time
I've shown my feelings the sincerity inside
I've expressed the emotions, the sentiments
I rearrange my life just to follow you
I befriended sorrow and rejection for Cupid's pity
But for all I've done, you just remain neutral
It brought a tiredness that I can't go on anymore
I need to stop, leave everything to destiny
Because I perfectly done my part
Was there ever a time I made you smile
Was there ever a time, I occupied your mind
Was there ever a time you missed me
Was there ever a time you taught you love me
Have you ever felt you cared for me
Have you ever felt my presence enchanted you
Have you ever felt I made you blue
Have you ever felt you need me too
I wish somehow even a second you do
Just a consolation to a tired heart
I hope soon when I look back memory
Those were just memories of a man I used to love
Joy Is Given, Sorrow Is Lent
"Sorrow is one of the things that are lent, not given.
A thing that is lent may be taken away;
A thing that is given is not taken away.
Joy is given;
Sorrow is lent.
We are not our own,
we are bought with a price...
Our sorrow is lent us for just a little while
that we may use it for eternal purposes.
Then it will be taken away
and EVERLASTING JOY
will be our Father's gift to us,
and The Lord WILL wipe away all the tears from off all faces."
-Amy Carmichael
A thing that is lent may be taken away;
A thing that is given is not taken away.
Joy is given;
Sorrow is lent.
We are not our own,
we are bought with a price...
Our sorrow is lent us for just a little while
that we may use it for eternal purposes.
Then it will be taken away
and EVERLASTING JOY
will be our Father's gift to us,
and The Lord WILL wipe away all the tears from off all faces."
-Amy Carmichael
And in my quiet moments, when it is just me...
I cry out for peace
I cry out for joy
I cry out for hope for our family.
And in my quiet moments...I give thanks.
Thanks for a husband who loves The Lord, and his family.
Thanks for 3 children who bring me joy every day.
Thanks for a loving God who is unchanging, and who still holds our broken and hurting hearts.
Thankful for everyday i have with jordan!
Thankful for the hope of Heaven.
I am blessed whether in abundance or in need.
I cry out for joy
I cry out for hope for our family.
And in my quiet moments...I give thanks.
Thanks for a husband who loves The Lord, and his family.
Thanks for 3 children who bring me joy every day.
Thanks for a loving God who is unchanging, and who still holds our broken and hurting hearts.
Thankful for everyday i have with jordan!
Thankful for the hope of Heaven.
I am blessed whether in abundance or in need.
DON'T QUIT
When things go wrong, as they sometimes will,
When the road you're trudging seems all uphill,
When the funds are low, and the debts are high,
And you want to smile, but you frown a bit,
Rest if you must, but don't you quit.
Life is strange with its twists and turns,
As everyone of us sometimes learns,
And many a failure turns about,
When he might have won had he stuck it out;
Don't give up though the pace seems slow,
You may succeed with another blow.
Success is failure turned inside out,
The silver tint of the clouds of doubt,
And you can never tell how close you are,
It may be near when it seems so far;
So stick to the fight when you're hardest hit,
It's when things seem worst
That you must not quit.
When the road you're trudging seems all uphill,
When the funds are low, and the debts are high,
And you want to smile, but you frown a bit,
Rest if you must, but don't you quit.
Life is strange with its twists and turns,
As everyone of us sometimes learns,
And many a failure turns about,
When he might have won had he stuck it out;
Don't give up though the pace seems slow,
You may succeed with another blow.
Success is failure turned inside out,
The silver tint of the clouds of doubt,
And you can never tell how close you are,
It may be near when it seems so far;
So stick to the fight when you're hardest hit,
It's when things seem worst
That you must not quit.
Wednesday, December 8, 2010
Hey Everybody! Update On Jordan!!!
Update On Jordan!
He Got His Breathing Tube Out! He Is Still On His Antibiotics And His Iv Nutrition. They Will Start Feeding Him Hopefully On December !4th, (It Depends On What He Is Or How He Is Doing On That Day) He Is Just A Fighter And He Continues To Fight! Where Ever I Have Any Updates On Jordan I Will Post It!
He Got His Breathing Tube Out! He Is Still On His Antibiotics And His Iv Nutrition. They Will Start Feeding Him Hopefully On December !4th, (It Depends On What He Is Or How He Is Doing On That Day) He Is Just A Fighter And He Continues To Fight! Where Ever I Have Any Updates On Jordan I Will Post It!
LETTER TO JORDAN
Jordan,
From the bottom of your mommies heart I am so thankful for the way you have changed me. All of the things that I thought were such a big deal no longer matter. Because of you I have so many things to be thankful for. Because of you I will never look at this world the same. I promise to give you the best chance that I can give you. I promise to cherish everyday that you have with me. I promise to continue to fight for you. I promise to give you the best life I can give you. I owe you the world son.
I love you will all my heart and then some,
Mommy
From the bottom of your mommies heart I am so thankful for the way you have changed me. All of the things that I thought were such a big deal no longer matter. Because of you I have so many things to be thankful for. Because of you I will never look at this world the same. I promise to give you the best chance that I can give you. I promise to cherish everyday that you have with me. I promise to continue to fight for you. I promise to give you the best life I can give you. I owe you the world son.
I love you will all my heart and then some,
Mommy
SOME BONDS CANNOT BE UNDERSTOOD!
Some bonds cannot be understood...
Unless you have walked them before...
A path that I would not have chosen...
A future I just can't ignore.
We've all watched our children intently...
Memorizing each line...
And let them leave our loving arms...
And prayed things would be fine.
We've paced the halls awaiting news...
And wondered just what lie in store...
We've felt our own heart's racing as...
We walked through an ICU door...
We've seen the child we love so much...
Struggling to overcome...
The lines...the cords....the monitors...
No thoughts...no words...would come...
We've prayed for an improvement...
We've laid it in God's hands..
We've cried...we've hoped...we've worried...
We've wondered of God's plans.
We've learned just how a heart works...
Each valve and artery...
We've asked alot of questions...
We've faced each surgery.
And somewhere down this well worn path...
We've met more families...
Who know exactly what it means...
To live with this disease.
We've smiled at every triumph...
And shared in every sigh...
We've prayed for a child that struggles...
And each family that must say goodbye.
Some battles are fought with bullets...
And weapons made for war...
While these are fought in silence...
Behind a hospital door...
We've wondered what lies in our future...
We've been thankful for just one more day...
We've stopped and watched with tear-filled eyes...
Our children...as they play.
We've struggled with ounces and weight gain...
Why won't my child just eat?
But heart mom's ...we're a tough group...
We've learned how to face a defeat.
We've faced those moments...others do...
When life has got us stressed...
But it doesn't take long to remember...
That we are richly blessed.
We've taken on a whole new role...
One we we wouldn't exchange if we could...
We know that life is difficult...
We hold onto all that is good.
God chose each of us carefully...
I do believe he smiled...
Some bonds begin with strangers...
And just one special child.
Unless you have walked them before...
A path that I would not have chosen...
A future I just can't ignore.
We've all watched our children intently...
Memorizing each line...
And let them leave our loving arms...
And prayed things would be fine.
We've paced the halls awaiting news...
And wondered just what lie in store...
We've felt our own heart's racing as...
We walked through an ICU door...
We've seen the child we love so much...
Struggling to overcome...
The lines...the cords....the monitors...
No thoughts...no words...would come...
We've prayed for an improvement...
We've laid it in God's hands..
We've cried...we've hoped...we've worried...
We've wondered of God's plans.
We've learned just how a heart works...
Each valve and artery...
We've asked alot of questions...
We've faced each surgery.
And somewhere down this well worn path...
We've met more families...
Who know exactly what it means...
To live with this disease.
We've smiled at every triumph...
And shared in every sigh...
We've prayed for a child that struggles...
And each family that must say goodbye.
Some battles are fought with bullets...
And weapons made for war...
While these are fought in silence...
Behind a hospital door...
We've wondered what lies in our future...
We've been thankful for just one more day...
We've stopped and watched with tear-filled eyes...
Our children...as they play.
We've struggled with ounces and weight gain...
Why won't my child just eat?
But heart mom's ...we're a tough group...
We've learned how to face a defeat.
We've faced those moments...others do...
When life has got us stressed...
But it doesn't take long to remember...
That we are richly blessed.
We've taken on a whole new role...
One we we wouldn't exchange if we could...
We know that life is difficult...
We hold onto all that is good.
God chose each of us carefully...
I do believe he smiled...
Some bonds begin with strangers...
And just one special child.
I am a Heart Mother
One day my world came crashing down,
I'll never be the same...
They told me that my child was sick..
I thought, am I to blame?
I don't think I can handle this...
I'm really not that strong..
It seemed my heart was breaking..
As, I'd loved him for so long.
I will not give up on this child..
despite your best "advice"..
I will give my child a chance..
No matter what the price..
And I will learn all that I need..
to help my child to thrive...
I'll even use that feeding tube..
My child will survive!
And he'll needs lots of therapy?
And he just can't gain weight?
Alright God I can do this..
I will not curse our fate.
The feeding pump beeps,( at 3:00 a.m.)
It serves as my reminder..
How many parents would welcome that sound?
Tomorrow Lord, I will be kinder.
Another angel earns their wings..
and I run to my sleeping child's bed..
I watch him then, for quite awhile..
(I bend down and kiss his head)
Then I cry for the parent's whose lives have been broken..
And I look to You wondering why?
Oh Lord, I just can't know your ways..
No matter how I try.
And yet, I trust You hold his life..
(and guide us through each day)
My mind says savor each moment he's here...
But my heart whispers,"Please let him stay".
From... pacing the surgical waiting room...
to sitting by his hospital bed...
From... wishing for a good nights sleep..
to learning every med..
From... wondering will he be alright?
to watching him reach out his hands..
with every smile, my heart just melts..
(despite life's harsh demands)
For all who see that faded line..
I look to them and smile..
You see my child is loved so much..
I would face any trial...
That same scar I trace with my finger..
(It's the door to his beautiful heart)
You must have known how much I'd love him..
(Just as You loved him right from the start)
A heart mom is always a heart mom..
(wise beyond all of his years)
And for those who have angels in heaven..
Our hearts share in all of your tears..
On Mother's Day I will remember..
You chose me for him(and no other)
And I will embrace that beautiful day..
When I became a "heart mother".
I'll never be the same...
They told me that my child was sick..
I thought, am I to blame?
I don't think I can handle this...
I'm really not that strong..
It seemed my heart was breaking..
As, I'd loved him for so long.
I will not give up on this child..
despite your best "advice"..
I will give my child a chance..
No matter what the price..
And I will learn all that I need..
to help my child to thrive...
I'll even use that feeding tube..
My child will survive!
And he'll needs lots of therapy?
And he just can't gain weight?
Alright God I can do this..
I will not curse our fate.
The feeding pump beeps,( at 3:00 a.m.)
It serves as my reminder..
How many parents would welcome that sound?
Tomorrow Lord, I will be kinder.
Another angel earns their wings..
and I run to my sleeping child's bed..
I watch him then, for quite awhile..
(I bend down and kiss his head)
Then I cry for the parent's whose lives have been broken..
And I look to You wondering why?
Oh Lord, I just can't know your ways..
No matter how I try.
And yet, I trust You hold his life..
(and guide us through each day)
My mind says savor each moment he's here...
But my heart whispers,"Please let him stay".
From... pacing the surgical waiting room...
to sitting by his hospital bed...
From... wishing for a good nights sleep..
to learning every med..
From... wondering will he be alright?
to watching him reach out his hands..
with every smile, my heart just melts..
(despite life's harsh demands)
For all who see that faded line..
I look to them and smile..
You see my child is loved so much..
I would face any trial...
That same scar I trace with my finger..
(It's the door to his beautiful heart)
You must have known how much I'd love him..
(Just as You loved him right from the start)
A heart mom is always a heart mom..
(wise beyond all of his years)
And for those who have angels in heaven..
Our hearts share in all of your tears..
On Mother's Day I will remember..
You chose me for him(and no other)
And I will embrace that beautiful day..
When I became a "heart mother".
If I Could Write Your Story
If I could write your story son...
(Oh how I wish I could)
I'd pen for you a journey...
That held nothing but good.
Wouldn't it be perfect...
If that job belonged to me?
I think I'd change a thing or two...
While writing your story.
I'd write of lasting happiness...
The storms would stay at bay..
I"d write your story carefully...
I'd have so much to say...
You'd know not of a hospital...
Or days in ICU...
You'd only know of simple things...
Like other children do.
The sun would rise...yes everyday...
And shine to make you smile...
You'd never know a day of pain...
You'd never face a trial.
You'd dance to music all your own...
While watching Sesame Street...
I'd tuck you into bed each night...
And life would be complete.
I'd write of picnics in the park...
And winters in the snow...
I'd write of laugher,joy and love...
I'd sit and watch you grow.
I'd proofread till my eyes grew tired...
Each line and paragraph...
And let my pen fall to the floor...
Then stop to hear you laugh.
And never would I question...
What sick children must face...
Never would I have a need...
To ask God for his grace.
I'd likely live oblivious...
Of what it means to be...
A member of this "special club"...
I call my heart family.
If I could write your journey son...
Perhaps I'd not convey...
The message that HE longs to share...
"We must live for today".
Your story has been written...
Each stroke penned with great care...
He knows each thought I have of you...
He's numbered every hair.
No I can't write your story son...
Although I wish I could...
I must heed what HE says to me...
"All things work for the good".
If I could write the life you'd live...
I'd fail...don't you see?
I'll leave it in much better hands...
He'll write it perfectly.
(Oh how I wish I could)
I'd pen for you a journey...
That held nothing but good.
Wouldn't it be perfect...
If that job belonged to me?
I think I'd change a thing or two...
While writing your story.
I'd write of lasting happiness...
The storms would stay at bay..
I"d write your story carefully...
I'd have so much to say...
You'd know not of a hospital...
Or days in ICU...
You'd only know of simple things...
Like other children do.
The sun would rise...yes everyday...
And shine to make you smile...
You'd never know a day of pain...
You'd never face a trial.
You'd dance to music all your own...
While watching Sesame Street...
I'd tuck you into bed each night...
And life would be complete.
I'd write of picnics in the park...
And winters in the snow...
I'd write of laugher,joy and love...
I'd sit and watch you grow.
I'd proofread till my eyes grew tired...
Each line and paragraph...
And let my pen fall to the floor...
Then stop to hear you laugh.
And never would I question...
What sick children must face...
Never would I have a need...
To ask God for his grace.
I'd likely live oblivious...
Of what it means to be...
A member of this "special club"...
I call my heart family.
If I could write your journey son...
Perhaps I'd not convey...
The message that HE longs to share...
"We must live for today".
Your story has been written...
Each stroke penned with great care...
He knows each thought I have of you...
He's numbered every hair.
No I can't write your story son...
Although I wish I could...
I must heed what HE says to me...
"All things work for the good".
If I could write the life you'd live...
I'd fail...don't you see?
I'll leave it in much better hands...
He'll write it perfectly.
heart story.... author unknown
CONGENITAL HEART DEFECT Somewhere....someplace...today.... A family is waiting to hear..... Is something wrong with their baby? The answers aren't quite clear... This family has entered an unwanted world... And they just don't know what to expect... Somewhere...someplace...today They first heard the words: heart defect. And how they hoped this was not true... And thought...this cannot be... I too...know just how this feels.. This happened to ME... Somewhere...someplace...today... A man and a woman embrace... Their baby is in surgery... They long to see her face... They haven't got to hold her yet... Without...a cord or line... They pace the room awaiting news... And hope she'll be just fine. Prayers fill this busy waiting room.. And mom and dad are scared... Somewhere...someplace..today... The tiniest hearts are repaired. Somewhere...someplace...today... A child's growing fast... Smiling, laughing, thriving... Her mom thinks...can this last? It's almost easy...to forget That anything is wrong... Somewhere...someplace...today... Her child seems so strong. Somewhere...someplace...today... A little girl fights...just to live... A father holds her tiny hand... His love...all he can give... The doctor's are all baffled... They fear that she might die... Somewhere...someplace...today... A family says goodbye... Somewhere...someplace...each year... More than 40,000 families will see... What it means...when something's wrong... They'll face a CHD. Today...for just a moment... Stop...remember...reflect... My life has been forever changed by a heart defect.
Tuesday, December 7, 2010
Heart Poem... anonymous author
Heart Poem...
It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you". He reassures the scared little angel that everything will be okay, and that she is just going for a visit. She is still not swayed on this idea.
So Jesus kneels down, and says, "How about if you leave half of your heart here with me and take the other half with you, will that be okay?" The angel smiles and says, "I guess that will work". But the little angel is still a little scared.
She asks,"Will I be okay with only half of my heart?" Jesus replies,"Of course you will, I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says "When you are born, your mommy and daddy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart".
"Enjoy your time with your family, play and laugh everyday." "And when its time to come back to heaven, whenever that may be, I will make your heart whole again. Always remember that you are not broken, just torn between two loves."
SLEEPY LITTLE JORDAN
JORDAN SLEEPS ALOT... HERE ARE A COUPLE PICS OF HIM SLEEPING PEACEFULLY!! HE LOOKS SO CUTE WHEN HE SLEEPS!!!
LITTLE HEARTS HOLD BIG HOPES!!
ISN'T HE THE CUTEST THING YOU HAVE EVER SEEN??
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